Current Evaluation Services Projects

The Thalidomide Trust
Monitoring the Ten Year Health Grant to Thalidomide-affected People

There is growing evidence, both here in the UK and internationally that Thalidomide-affected people are experiencing an increasing number of Thalidomide-related health problems as they age. They are also incurring significant costs in living with these problems. Following an earlier three year pilot Health Grant (evaluated by Firefly Research), the new ten year Health Grant funded by the Health Departments in England, Scotland, Wales and Northern Ireland (awarded from 2013 to 2023) is now in place. For many Thalidomide-affected people it will be central to managing their changing health needs and maintaining their quality of life. The Health Grant monitoring project, which the Thalidomide Trust has commissioned Firefly Research to undertake, will inform future discussions about the continuation of the Health Grant. It has three broad aims:

• To examine how the health of Thalidomide-affected people is changing over the life of the Grant
• To understand how people are using their Health Grants
• To explore the difference the Grant is making to their lives

The project, which runs from 2013 to 2020 has two main elements:

• A health related quality of life and employment survey of all Thalidomide-affected people in the UK (using SF12 Health Related Quality of Life questionnaire and together with a number of ‘bespoke’ questions)
• Annual in depth telephone interviews with around 40 Thalidomide-affected people, designed to explore current or recent Thalidomide-related health problems, the use of the Health Grant, and the future plans and issues

The report from the first year of the monitoring project will be available on the Thalidomide Trust Website shortly ( )

York Citizens Advice Bureau
Evaluation of  Family Money Advice Project

Despite being one of Britain’s most prosperous cities, York has around 4,700 children living in poverty. The Family Money Advice project is central to York CAB’s work to eliminate child poverty in the city, and is an important part of the multi-agency York Child Poverty Strategy. The project, which is funded by the Big Lottery Fund, aims to provide outreach advice services to families living in the city’s five most deprived wards. The project began in September 2012 and will run for three years. Firefly Research is carrying out an evaluation of the project on behalf of York CAB with support from the Joseph Rowntree Foundation. The evaluation has been running since July 2013 and its main aims are to assess the overall impact of the Family Money Advice project, such as numbers of families reached, to explore the success of the approaches taken in the project and to gather specific information about families living in poverty in York to address gaps in current knowledge. There are four parts to the evaluation: collation and analysis of data already being collected by CAB; additional data collection with families; qualitative interviews with families and interviews with CAB staff and key contacts from the outreach centres.